NewsOct 12, 2021

SBA Receives $25,000 Grant from the Christopher & Dana Reeve Foundation


Arlington, VA, October 2021–The Spina Bifida Association is proud to announce that it has been awarded $25,000 as part of the Christopher & Dana Reeve Foundation National Paralysis Resource Center (PRC) 2021 COVID-19: Addressing Social Isolation Quality of Life grants. Twenty-one grants totaling $580,934 were awarded. The Quality of Life Grants Program supports nonprofit organizations that empower individuals living with paralysis. Since the Quality of Life Grants Program’s inception, more than 3,300 grants totaling over $32 million have been awarded. Funding for this program was made possible through a cooperative agreement with the Administration for Community Living (ACL grant #90PRRC0002-03-00).

The Reeve Foundation National Paralysis Resource Center has several grants under the Quality of Life program awarding grants in different category areas, varying in different amounts. The COVID-19: Addressing Social Isolation Quality of Life grants funds one-year grants of up to $50,000 to nonprofits programs that address social isolation during the COVID-19 pandemic to enhance the connectedness of people living with paralysis and their caregivers to their communities and preventing adverse health outcomes.

“Even as our nation slowly emerges from the devastating and tumultuous COVID-19 pandemic, many in our community are still feeling the effects of social isolation due to their compromised health conditions, and unfortunately, this feeling will linger until the virus is controlled and they feel safe enough to resume life as before,” said Mark Bogosian, Director, Quality of Life Grants Program, Reeve Foundation. “The Reeve Foundation is proud to be able to offer the support needed to help alleviate the physical, mental, and behavioral effects related to isolation and loneliness brought on by the pandemic.”

“The Spina Bifida community is grateful to the Dana & Christopher Reeve Foundation for providing an avenue for our community to participate in weekly adaptive exercise and wellness activities,” said Sara Struwe, President and CEO of the Spina Bifida Association. “Thanks to this grant, we’ve engaged experienced people with Spina Bifida to lead fitness classes and workshops, which in turn empowers those participating in the program.”

About the Reeve Foundation:

 The Christopher & Dana Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research and improving the quality of life for individuals and families impacted by paralysis. By uniting the brightest minds in the field, we are working tirelessly to accelerate scientific discovery across the field of spinal cord research by investing in labs across the globe. Additionally, through a cooperative agreement with the Administration for Community Living, the Reeve Foundation’s national Paralysis Resource Center (PRC) promotes the health, well-being, and independence of people living with paralysis, providing comprehensive information, resources, and referral services assisting over 100,000 individuals and families since its launch in 2002. The Reeve Foundation is committed to elevating our community’s voices and needs to achieve greater representation and independence. We meet all 20 of the Better Business Bureau’s standards for charity accountability and hold the BBB’s Charity Seal.  For more information, please visit our website at or call 800-225-0292.

 About the Spina Bifida Association

 The Spina Bifida Association (SBA), founded in 1973, is the only national voluntary health agency dedicated to Spina Bifida. The mission is to build a better and brighter future for all those impacted by Spina Bifida. Fueled by dedicated healthcare providers, parents, adults, caregivers, and others, we are committed to helping people live longer, healthier lives through Research, Education & Support, Clinical Care, Network Building, and Advocacy. Please visit our website or call 800-621-3141.


# # #

Sheliah Roy
Spina Bifida Association
[email protected]

Rita Gentles
Christopher & Dana Reeve Foundation
(973) 379-2690 ext. 7123
[email protected]


  • News

    SBA Receives $25,000 Grant from the Christopher & Dana Reeve Foundation

  • News

    Spina Bifida Association Update on COVID-19 – August 2021

  • News

    SBA writes letter to President-elect Biden