2023 Teal on the Hill
February 26 – 28, 2023
Teal on the Hill is an annual event that brings of members of the Spina Bifida community together from across the U.S. to advocate for issues such as continued funding for the National Spina Bifida Program at the Centers for Disease Control & Prevention (CDC); disability rights; and affordable and accessible health care, medical supplies, and technologies. We want you to be a part of the movement!
Your Voice Matters
In 2020, more than 350 people from 44 states and the District of Columbia sent more than 2,000 emails to members of Congress. We’re delighted to report that on December 28, 2020, the Department of Labor, Health, and Human Services signed legislation to include an additional $1 million for the National Spina Bifida Program at the CDC, bringing the total budget to $7 million. This was the first increase the Program received in seven years!
In 2022, over 150 people from across the U.S. came together virtually meeting with nearly 90 congressional offices! Constituents advocated for an increase in funding for the National Spina Bifida Program at the Centers for Disease Control & Prevention (CDC) as well as the passage of the Work Without Worry Act.
Because of you, Congress for the first time is requiring the CDC to prepare a report laying out the adult clinical care challenges people with Spina Bifida are facing and the issues surrounding data collection. This report will be important for helping us secure additional funding!
- Advocacy 101 – Presented by Julie Hyams and Laura Parks
- SBA Legislative Priorities – Presented by John Wiener, MD