We recognize the value of tapping into the expertise that only people with Spina Bifida and their families have. We invite them to share their insights to help improve and develop programs and services that support them in their daily lives. We offer many networks and opportunities for people to connect.


Find a Chapter

We have a network of Chapters across the country that host events, provide support, and offer local resources.

Find your Chapter

Meet some of our friends


Mary Cogan Holleran: A Person, not a Diagnosis

After Liam was born, he became a person not a diagnosis

Mary Cogan Hollerman, Mother to Liam