Every person affected by Spina Bifida experiences their own journey. Spina Bifida is often referred to as the “snowflake” condition as no two people are affected the same way.
Whether you are caring for a child with Spina Bifida or you are an adult with Spina Bifida, it is important that you learn as much as possible about your individual situation.
Life with Spina Bifida
Find resources by age, phase of life, or relationship to Spina Bifida.
Whether you are expecting a child with Spina Bifida or an adult, we offer guidance on each phase of life.
Connect with the Spina Bifida community
We have Chapters across the country, social media support groups, events and other activities
Connect