We hosted our inaugural Clinical Care Meeting in partnership with Lurie Children’s Hospital from June 28-30 in Chicago, Illinois. Clinicians from around the country, Spina Bifida Association Board (SBA) members and Chapter leaders came together to learn about the latest in the care of people with Spina Bifida and to share ideas with each other. You can watch many of the sessions by clicking on this link.

Below are links to some of the presentations:

Spina Bifida Association Overview

The Spina Bifida Collaborative Care Network 

How to Get What you Need to Become a Spina Bifida Clinic Care Partner

Transition Practices and Programs

Lifespan Model of Care

Evolution of a Lifetime Care Model in Spina Bifida Transition

Care Coordination

Care Coordination Plenary Panel and Spina Bifida Association Care Coordination Guidelines for Persons Living with Spina Bifida

Guidelines for the Care of People with Spina Bifida Research Priorities

SBA Guidelines for the care of people with Spina Bifida: Urology and Sexual Health 

Sexual Function in Men with Spina Bifida

Urology and Sexual Health

Sexual Function in Females with Spina Bifida

Risk of Abuse for Women with Spina Bifida