National Resource Center

A dedicated service focused on helping individuals across the United States and Australia address questions about living with Spina Bifida — in both English and Spanish.

How we help

Support, referrals and trusted resources

Find local support

Locate your nearest Spina Bifida Association chapter or peer support community.

Find a clinic

Identify the closest specialized clinic or care facility for coordinated care.

Local agencies & services

Discover local support agencies and the services available to you.

Ask a specialist

Submit complex medical inquiries to Spina Bifida care specialists.

Education resources

Get resources for school-related learning and health challenges.

Health fact sheets

Access health-related fact sheets and additional specialized assistance.

Contact the Center

We’re here for you

Phone1-800-621-3141, extension 800
Address1600 Wilson Blvd, Suite 800
Arlington, VA 22209

Spanish-language support is available through our dedicated Spanish resource line.

A family receiving support from the National Resource Center

Medical emergency? If you are experiencing a medical emergency or need immediate medical attention, dial 911 or contact your medical provider immediately.