Living with Spina Bifida
Spina Bifida is often referred to as the “snowflake” condition — because no two people are affected the same way. Every individual’s journey is unique.
Learn about your specific situation
Whether you are a caregiver or a person living with the condition, comprehensive learning about your own situation is essential. We organize our guidance by life phase so you can find what’s most relevant to you today — and what to expect next.
Visit the Resource CenterGuidance for every stage of life
Expectant Parents
Support for those expecting a child with Spina Bifida — from diagnosis to preparing for birth.
Infants & Children
Resources for early childhood, development, and the school years.
Teenagers & Transition
Guidance through adolescence and the transition toward independence.
Adults with Spina Bifida
Support for adult living, health, work and independent living.
You are not alone
Connect with the broader Spina Bifida community through local chapters, social media support groups, and community events and activities. Sharing experiences with others who understand can make all the difference.
Find your communityWe can help
Our National Resource Center responds to inquiries in Spanish and English with referrals and trusted resources.