Education
In-person and online education programs featuring medical experts, parents, and adults living with Spina Bifida.
Serving the United States & Australia
Working to Build a Better and Brighter Future
The mission of the Spina Bifida Association is to build a better and brighter future for all those impacted by Spina Bifida — across the United States and Australia.
166,000+
people with Spina Bifida across the U.S. & Australia
#1Most common permanently disabling birth defect
100+Health professionals shaping our care guidelines
2National resources now housed at the CDC
EN / ESBilingual support through our Resource Center
Our Priorities
How we build a brighter future
We serve and support every person impacted by Spina Bifida, at every stage of life.
Advocacy
We advocate for funding of Spina Bifida programs at the CDC, disability rights, and affordable, accessible health care.
Research
Guidelines for the Care of People with Spina Bifida provide evidence-based guidance on caring for the condition.
Support
Our National Resource Center provides referrals and resources, responding to inquiries in Spanish and English.
Living with Spina Bifida
The “snowflake” condition
Spina Bifida is often referred to as the “snowflake” condition because no two people are affected the same way. Whether you are a caregiver or a person living with the condition, learning about your specific situation is essential.
We organize guidance around every stage of life — from expectant parents to adults living independently.
Explore life stages
Resources for Everyone
We’re dedicated to serving every person impacted by Spina Bifida
For Expectant Parents
Support and guidance for those expecting a child with Spina Bifida.
Learn moreFor Parents of Infants & Children
Resources for early childhood and the school years.
Learn moreFor Adults
Support for adult living, independence and transition.
Learn moreFor Health Care Professionals
Evidence-based guidelines and clinical care resources.
Learn moreWe can help
Have a question? Need support? We’re here for you. Contact our National Resource Center for referrals and answers in English or Spanish.