Working to Build a Better and Brighter Future

Our Priorities

The mission of the Spina Bifida Association is to build a better and brighter future for all those impacted by Spina Bifida.


We offer in-person and online education programs featuring medical experts, parents, and adults with Spina Bifida.


We advocate for funding of Spina Bifida Programs at the CDC, disability rights, and affordable accessible health care.


Guidelines for the Care of People with Spina Bifida provide evidence-based guidance on caring for Spina Bifida.


Our National Resource Center provides referrals and resources, responding to inquires in Spanish and English.

What's New!

  • blog

    How to Exercise If You Have Spina Bifida

  • blog

    Spina Bifida Association to Introduce Lifespan Bowel Management Protocol

  • blog

    All of Us Research Program. A big moment for equality in Health Research

We can Help

Have a question? Need support? We're here for you. Contact our National Resource Center.

Spina Bifida Association